We have passed day 600 post transplant...

Submitted by Theresa on Mon, 05/26/2014 - 7:19am
Yesterday was day 600 post transplant.
Emily is doing well and has a very busy upcoming schedule.
We went out to Jake E's Riding
Ranch and took some Easter/Spring pictures of Emily and had a great time. (Will add photos)
Last Wednesday Emily turned 7 years old. She had the opportunity to receive a cake through Icing Smiles who assigned a baker here in Texas. Dream cakes in Rockwall made her an amazing birthday cake. We can't thank Mary Shirley enough for the beautiful job she did on Emily's cake. Hard to believe she has grown up so much already. Post transplant (and with the help of being free from TPN) she has shot up in height. She is now 4' 1/4". This coming Wednesday she has a surprise to look forward to, from one of her nurse friends/family, who is taking us to Great Wolf Lodge to enjoy a day of fun. This week she starts preparing for graduation from Kindergarten. She will have practice this week
and on Monday of next week and on June 3rd she graduates. Transplant set her back a year
(unfortunately we didn't know what we should have done to prevent that) but we are here a
graduation point now and couldn't be more thrilled.
In June we will be making a trip back to Omaha for a yearly visit. At that time Emily's NG tube will be changed out for a J tube. While she is in feeding therapy, she isn't even attempting to eat
enough to be considered "making progress". The longer she has the NG tube the more concerned we are that something will happen to cause problems with her sinuses.
That's the short version of Emily's update. I will update again after our trip to Omaha. Thank you for your continued following.