This blog is to tell Emily's story (aka: Munchkin). It will take you through her journey since she came into our care on January 18th, 2010. I hope to capture the milestones she has made since that date, as well as each milestone she makes pre and post transplant . http://cota.donorpages.com/PatientOnlineDonation/COTAforEmilyGraceS
Friday, July 25, 2014
Third times a charm...
I'm sure everyone within the United States heard, Emily had a new feeding device placed (for the 3rd time in a month). 6 adults in the room, 4 of whom were holding her down, absolutely unreal. Emily now has a new button placed in her jejunum, feeds are running at 90ml/hr (goal to reach is 135ml/hr to enable some time off feeds each day). So far so good, other than complaint of her side hurting which has been the same complaint each time they place a new device before the balloon breaks. Wish her luck on this one.
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