Another monthly appointment...

Submitted by Theresa on Fri, 07/13/2012 - 9:20am
Emily went to see Dr. Baker (her gastroenterologist) yesterday for her once a month
check in. He had to cauderize around her peg tube which she SCREAMED about,
then she refused to talk to him. Other than that she is doing well, labs are stable, for
her. She is now 41 inches tall and 19 1/2 kg on her weight. He said since it has been
a couple of months since her last hospital stay that he was ok with her having an
occasional Cheetos or a little bit of popcorn. To her this was a huge deal, even
though all she does is lick them, she never actuially eats them. So last night her and her dad had
some popcorn and she said it was "sooooooo good". So we go back next month, unless we receive
a call for transplant, and continue with her weekly labs. We will watch for any signs of belly pain
with her addition of the popcorn (oh and she has been licking Cheerios as well). So until the next
update...