It's been a Long journey...

these past six weeks. From the last post...what started as a line change in Louisiana, turned into pancreatitis in Texas, is carrying on in Nebraska with many new happenings. Emily's pain was unable to be controlled in the Texas hospital so the transplant doctors in Nebraska wanted her to come up for evaluation of her pancreatitis, and evaluation for reactivation on the National Transplant Listing. Again the pain has not been controlled as of yet, but many changes occurred because of that. Emily went through another Venogram and it was found that she has more available venous access than originally thought. This is great news. Although we received this news, the issue with the pancreas is not resolving and the transplant team suggested placing a peg tube to allieviate some of the pressure that may be causing some of the pain/or the stricture itself, that is in the pancreatic duct. They also feel that now is the time to reactivate her on the transplant listing for not only the small bowel but also a liver and pancreas. Today Emily received the peg tube. She is having more pain of course due to the surgery itself, but hopefully this will be the beginning of a new road to being more pain free. Tomorrow we hope to find out what the plan is to get us headed home or at least back to the hospital in Texas to start weaning off the narcotics. We are thinking that she will be placed back on the transplant listing by early next week...then we start back to the "sitting on ready" tract.