since the last update. Emily has been doing well for the most part, we had an overnight stay in PICU for fever and just to run the battery of tests needed to make sure there was no central line infection. We of course are breathing easier knowing it was just a UTI. She has been doing well since taking her meds, although she hates them.
Uncle Rick sent Em a little Harley Davidson shirt from bike week. As she puts it "Uncle Rick, Uncle Rick, I la him so much". She hasn't worn it yet but I can't wait to see her in it with her jeans and cow boots on!
Em has a new nurse, Jennifer. We went for several weeks without a nurse. So far, so good. She seems to like Jennifer, the nurse is very soft spoken and quiet. We like her. She spends her day actually doing things with Em so that keeps Dora and Diego off the TV for a while each day anyway.
We are on an official schedule now for TPN and fluids to keep the "pancreatic boogie man" away and keep the princess out of pain. So for it is working well.
Gotta scoot off here for now but will try to update again soon.
Theresa
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