Emily has officially been listed on the NATIONAL transplant listing rather than just at a regional level! This is awesome news just knowing that her chances of actually receiving a bowel have just increased by leaps and bounds. The downside to the news is being told that the risk involved for her is much greater than it would have been at the regional level (at regional level though, there was such a slim chance of her receiving the organ that was a "perfect match"). The transplant team has already mapped out their plan for her surgery and follow up care and are all over the past issues that caused her last transplant to be unsuccessful. With all the prayers that are being said, and have been said for this child by so many of you and many others that we don't even know, I know that God has her in his hands and will remain with her throughout life. I will update again soon, we are off to celebrate!
Theresa
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